“It’s important not to give up, because cancer today is no longer a death sentence — it’s a chronic illness.”

“There's too little discussion about various men's diseases; for most, it's a taboo. We're all rushing, have no time, feel ashamed, uncomfortable, and postpone until the last moment. I'm no exception—I needed regular check-ups, but for a decade, I couldn't find time to visit a urologist,” shares Gediminas Jakubonis sincerely, detailing his story upon hearing the diagnosis of testicular cancer.

What is your medical history? How did it all begin, and what were the initial symptoms that led you to consult a urologist?

It all started about 10–11 years ago when we decided to investigate the testicles because one was not in its regular position. The urologist urgently referred me for a CT scan. The results showed that one testicle hadn't descended, but that was all. The urologist mentioned two possible options: first, to remove it during surgery; second, to leave it under active surveillance. We decided to leave it as is and monitor it more frequently. But as is often the case with us men, as long as nothing hurts, we keep postponing check-ups, even when we've agreed to do them regularly. This winter, while tidying up at home, I lifted a TV that I'd moved a hundred times before, and the next day, I noticed a lump in my groin. I didn't think much of it, but the following morning at work, I felt unwell, and the pain intensified. After all the necessary tests, the result was an inguinal hernia and a suspected tumor in the undescended testicle.

What treatment was prescribed, and how did you feel during it?

The two weeks it took to complete all the tests were challenging: walking was difficult, I tired quickly due to pain, and the maximum weight I could lift was 3 kg. After receiving the CT scan results and undergoing a second biopsy (the first targeted a misleading necrotic area), I went to the chemotherapy specialist, and chemotherapy was initiated. The goal was to reduce the tumor, as the testicle measured 6 cm by 11 cm and was pressing on the bladder and intestines. An aggressive four-cycle chemotherapy regimen was applied, but once chemotherapy started, my condition improved, and symptoms eased. After the first week of chemotherapy, I noticed results: I could lift more, walk more easily, sleep longer at night without waking from pain or frequent urination, and night sweats significantly decreased—which, it turns out, is also a symptom of this diagnosis. During chemotherapy, I felt good, had a good appetite (not that I ever lacked one), and experienced no nausea. As of today, having just completed the chemotherapy course, I'd say I feel as if nothing happened, even though surgery is still pending.

What shortcomings or advantages do you see in the treatment process, and what experiences did you encounter?

The treatment and tests were carried out quite promptly and effectively. Of course, unforeseen individual nuances can arise during the process. Midway through my treatment, I developed an allergy to one medication; however, we didn't discontinue the infusion since only three weeks of its use remained. I believe treatment can be adjusted during the process or based on side effects, depending on the individual.

How did you feel upon learning the diagnosis?

Returning from the National Cancer Center, I had mixed feelings about the diagnosis. After reflecting on everything, I resolved that everything would be fine. I want to live another 50 years beyond what I've already lived, see my grandchildren, and raise my child. It's important not to give up, because oncology today is not a sentence, but a chronic illness. There are many other diseases that are fatal. Sixty years ago, we would have all been written off with such diagnoses, but nowadays, medicine has advanced so much that recovery is possible.

What questions arose first upon learning the diagnosis: testicle removal, chemotherapy, fertility, future sexual relations, or others?

Upon learning the diagnosis, questions about fertility and intimate life arose, but doctors reassured me that after all treatments and surgeries, everything would be fine. Before the entire treatment process, sperm freezing was immediately performed just in case, as we plan to have another child. Regarding the removal of the undescended testicle, there was no other option. As for intimate life—nothing has changed. I had people around me who had undergone chemotherapy, so I knew what side effects to expect and was more or less prepared and mentally ready.

How did those around you react? Did you receive support and help from them?

My wife and in-laws were the first to learn about the diagnosis; my father-in-law was deeply affected and finally sought medical attention for his health issues. My parents found out about the diagnosis only after the New Year, as I didn't want to ruin the festive mood before the holidays. Most people, upon learning about the diagnosis, were supportive and shared advice, but I believe it's essential to discuss everything with the treating doctor.

Did the illness and treatment disrupt your usual daily life, habits, hobbies, or work?

Upon learning about the illness, I didn't take sick leave; I told my workplace that as long as I could move and work, I would continue, and if I felt unwell, I would inform them and either go home or take sick leave. Not working and staying at home within four walls during the entire treatment isn't good—it only leads to all sorts of silly thoughts, which benefits no one. I worked on all my free workdays and took vacations for tests or chemotherapy. Over these months, I've learned to adapt significantly to life's changes: to live with less stress, view everything more calmly, worry less about insignificant things, and enjoy life and simple daily routines. Such diagnoses remind us that life is short, not everything is eternal, and there's no need to rush through life. One thing I have to avoid and miss is visiting saunas.

What would you wish for people on the path of illness? What should they pay attention to, and what provides strength in moments of weakness?

For those facing such a diagnosis, I would advise not to give up—everything will be fine; one needs to rethink and set new life goals and strive to achieve them. Personally, self-improvement books, motivational audio recordings, and seminars help me. On tougher days, I suggest not staying alone, spending time with best friends, attending public events, or spending a lot of time in nature.

In your opinion, what could help men be more attentive to their health, take care of it, and visit doctors more frequently for preventive check-ups?

Men might benefit from constant encouragement and reminders to visit doctors, not to delay, to talk, and to educate about the necessity of regularly taking care of their health. There's too little discussion about various men's diseases; for most, it's a taboo. We're all rushing, have no time, and postpone until the last moment. I'm no exception—I needed regular check-ups, but for a decade, I couldn't find time to visit a urologist. I kept postponing, even though certain symptoms had been present for a year: frequent nighttime urination, frequent sweating during sleep, but somehow I didn't give it much importance. During the biopsies, I had the opportunity to talk to several oncology patients, which was also beneficial. It turns out that regular routine blood and urine tests don't always show early changes in the body; they are usually noticeable when you start examining a specific area.

What role does patient-doctor collaboration and open communication play in the healing process?

It's very important to communicate, discuss, seek solutions together, and do what's necessary. Nothing should be hidden—everything should be told in detail so that the doctor can prescribe the necessary treatment as easily and accurately as possible. Such communication is most helpful during the treatment processes. If any questions arise—don't be afraid to ask the doctor, as nothing is taboo.

Do you think the concept of masculinity (stereotypes) in Lithuania helps or hinders timely doctor visits? Why do men delay seeking help?

In Lithuania, masculinity stereotypes certainly still hinder timely doctor visits. People postpone, and then it's too late. I think many men might fear seeking medical help because they think their intimate life will worsen or they'll become infertile. But if you close your eyes to problems, they don't go away—they only get more complicated. Also, educating society about diseases, their diagnosis, treatment, and what to expect when visiting a doctor is beneficial; perhaps everyone will gradually feel more confident knowing what to expect.